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EU funding (€196,807): 947598 - Euro-NMD Registry - Patient Centered and Interoperable Registry Hub for Rare Neuromuscular Diseases Fts1 May 2020 Financial Transparency System
Overview
Text
Project
| Subject of Grant or Contract | 947598 - EURO-NMD REGISTRY - PATIENT CENTERED AND INTEROPERABLE REGISTRY HUB FOR RARE NEUROMUSCULAR DISEASES |
| Responsible Department | X - CHAFEA - Consumers, Health and Food Executive Agency |
| Programme Name | 3.0.9 - Health |
| Type of Contract* | Action Grant |
| Reference of the Legal Commitment (LC) | JAG.594150 |
| Management Type | Direct management |
| Geographical Zone | |
| Budget | BGUE |
| Action Location | |
| Commitment Total Amount (EUR) (A+B) | 196,807.00 |
| Project end Date | 30/04/2023 |
| Commitment Contracted Amount (EUR) (A) | 200,000.00 |
| Benefiting Country | France (25%), Germany (50%), Netherlands (25%) |
| Budget Line Name | Third programme for the Union’s action in the field of health (2014-2020) |
| Funding Type | Grant |
| Additional/Reduced Amount (EUR) (B) | -3,193.00 |
| Year | 2020 |
| Source of (Estimated) Detailed Amount | An estimated repartition for each beneficiary was available in our central accounting system. The actual share may evolve over the lifespan of a project. |
| Reference (Budget) | JAG.594150.1 |
| Commitment Consumed Amount (EUR) | 196,807.00 |
| Budget Line Number | 17 03 01 |
| Project Start Date | 01/05/2020 |
| Expense Type | Operational |
Beneficiaries
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Coordinator No Address ????? ?? ????????? ?? ?????????, ??Beneficiary’s Contracted Amount (EUR) 0.00 Beneficiary’s Estimated Contracted Amount (EUR) 0.00 Postal Code 75013 Beneficiary Country France Beneficiary’s Estimated Consumed Amount (EUR) 0.00 VAT Number of Beneficiary FR00775609571 Beneficiary Group Code LE05 Not-for-Profit Organisation (Nfpo) Yes Beneficiary Type Private Companies Name of Beneficiary ASS FRANCAISE CONTRE LES MYOPATHIES Nuts2 Ile de France City PARIS 13 Non-Governmental Organisation (NGO) No -
Coordinator Yes Address ? ?????? ????????Beneficiary’s Contracted Amount (EUR) 50,000.00 Beneficiary’s Estimated Contracted Amount (EUR) 49,201.75 Postal Code 75000 Beneficiary Country France Beneficiary’s Estimated Consumed Amount (EUR) 49,201.75 VAT Number of Beneficiary FR95267500452 Beneficiary Group Code LE04 Not-for-Profit Organisation (Nfpo) No Beneficiary Type Public Bodies Name of Beneficiary ASSISTANCE PUBLIQUE HOPITAUX DE PARIS Nuts2 ?City PARIS Non-Governmental Organisation (NGO) No -
Coordinator No Address ????????? ?? ? ??????? ?????Beneficiary’s Contracted Amount (EUR) 0.00 Beneficiary’s Estimated Contracted Amount (EUR) 0.00 Postal Code 75651 Beneficiary Country France Beneficiary’s Estimated Consumed Amount (EUR) 0.00 VAT Number of Beneficiary FR75483754347 Beneficiary Group Code LE05 Not-for-Profit Organisation (Nfpo) Yes Beneficiary Type Private Companies Name of Beneficiary ASSOCIATION INSTITUT DE MYOLOGIE -AIM* Nuts2 Ile de France City PARIS Non-Governmental Organisation (NGO) No -
Coordinator No Address ???????????? ??Beneficiary’s Contracted Amount (EUR) 0.00 Beneficiary’s Estimated Contracted Amount (EUR) 0.00 Postal Code 4614 HC Beneficiary Country Netherlands Beneficiary’s Estimated Consumed Amount (EUR) 0.00 VAT Number of Beneficiary ?Beneficiary Group Code LE05 Not-for-Profit Organisation (Nfpo) Yes Beneficiary Type Private Companies Name of Beneficiary STICHTING DUCHENNE DATA FOUNDATION Nuts2 Noord-Brabant City BERGEN OP ZOOM Non-Governmental Organisation (NGO) No -
Coordinator No Address ???????? ?Beneficiary’s Contracted Amount (EUR) 50,000.00 Beneficiary’s Estimated Contracted Amount (EUR) 49,201.75 Postal Code 6525 XZ Beneficiary Country Netherlands Beneficiary’s Estimated Consumed Amount (EUR) 49,201.75 VAT Number of Beneficiary NL002968721B01 Beneficiary Group Code LE05 Not-for-Profit Organisation (Nfpo) Yes Beneficiary Type Private Companies Name of Beneficiary STICHTING KATHOLIEKE UNIVERSITEIT Nuts2 Gelderland City NIJMEGEN Non-Governmental Organisation (NGO) No -
Coordinator No Address ?????????????? ??Beneficiary’s Contracted Amount (EUR) 0.00 Beneficiary’s Estimated Contracted Amount (EUR) 0.00 Postal Code 3905 GG Beneficiary Country Netherlands Beneficiary’s Estimated Consumed Amount (EUR) 0.00 VAT Number of Beneficiary ?Beneficiary Group Code LE05 Not-for-Profit Organisation (Nfpo) Yes Beneficiary Type Private Companies Name of Beneficiary STICHTING UNITED PARENT PROJECTS MUSCULAR DYSTROPHY Nuts2 Utrecht City VEENENDAAL Non-Governmental Organisation (NGO) No -
Coordinator No Address ?????????? ??????? ??Beneficiary’s Contracted Amount (EUR) 100,000.00 Beneficiary’s Estimated Contracted Amount (EUR) 98,403.50 Postal Code 79106 Beneficiary Country Germany Beneficiary’s Estimated Consumed Amount (EUR) 98,403.50 VAT Number of Beneficiary DE811506626 Beneficiary Group Code LE04 Not-for-Profit Organisation (Nfpo) No Beneficiary Type Public Bodies Name of Beneficiary UNIVERSITATSKLINIKUM FREIBURG* Nuts2 Freiburg City FREIBURG Non-Governmental Organisation (NGO) No
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